Family Support
Title:
"Texas Family Support Initiative"
Abstract:
This project proposes to begin an implementation process that builds
on the work of the previous family support grant to maximize
system change opportunities for families of children with disabilities. It
will provide direction on policy for family support services and
assume an additional planning and oversight role relating to
implementation of key systems change proposals. Networks
have been established and organized in order to plan local
family support systems change strategies. Demonstration of
the process and effects of implementing these system changes
will be conducted in areas of the state with very different
demographics, services, and family support systems. This will
enable existing partnerships and various services organizations to
to be strengthened, while at the same time expand relationships
to other community partners and have results that show
heightened awareness of family needs and perspectives.
Institute:
Texas Health and Human
Services Commission
P.O. Box 13247
Austin, TX 78711
Contact:
Terry Beattie
(512) 424-6528
(512) 424-6591 FAX
E-mail Address:
terry.beattie@hhsc.state.tx.us
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0045
Title:
"Missouri Partnership for Family Directed Supports"
Abstract:
The purpose of this project is to enhance the comprehensive family-
directed support system and provide statewide training and
technical assistance to ensure identfication of needs, planning
and program implementation, and evaluation of outcomes.
Specific goals are to continue coordinated statewide consumer
and family-directed planning and to develop a network of
consumers, parents, siblings, and professionals to share and
help strengthen statewide programs that will enhance the
abilities of families to care for their family members with a
disability.
Institute:
Curators of the University of
Missouri, Institute for
Human Development
5100 Rock Hill Road
Kansas City, MO
Contact:
Carl Calkins
(816) 235-1301
(816) 235-1762 FAX
E-mail Address:
calkinsc@umhc.edu
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0046
Title:
"Supporting Elderly Families Caring for Sons and Daughters with
Disabilities at Home"
Abstract:
This project proposes to continue to further its initiative to
strengthen and expand the family support system.
The project will support elderly family members with
resource information to share with one another and assist with
personal future planning, guardianship, wills, trusts, and other
personal future planning. It will provide respite care services
and provide service coordinators with unique knowledge about
people who are elderly that need help locating various services.
Institute:
Community Support Network, Inc.
10 Ferry Street, Suite 401
Concord, NH 03301
Contact:
Francis J. Haines
(613) 229-1982
(613) 223-2377 FAX
E-mail Address:
jhaines@cnsi.org
Period:
01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0047
Title:
"Increase Multi-Cultural Participation"
Abstract:
This proposal will focus on the sensitive needs for support
services that address ethnic, cultural, and linguistic differences.
It will use a past-experience approach of successes and lessons as
a form of implementing services in the community. It will expand and
broaden neighborhoods that are underserved and have not
received available support and services. Plans are to connect
and identify existing and newly created services. The project will
use trained parents of children with disabilities and work closely
with state agencies to help families become their own advocates.
Institute:
Research Foundation for
Mental Hygiene
44 Holland Avenue
Albany, NY 12208
Contact:
Mary Ellen Giblin
(518) 473-1890
(518) 473-9695 FAX
E-mail Address:
GIBLINME@aol.omr.state
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Diann Winford
(202) 690-5963
Project #:
90DF0048
Title:
"Family Support:"
Abstract:
North Dakota Family Support Project - A
collaborative effort among provider organizations will establish
and enhance family support through activities designed to
empower families on how to access and manage resources,
receive individualized services, and become knowledgeable
participants in policy review and development. Project staff will
create a website that provides family information on training
and support services topics. A training manual will be created to
describe effective strategies for recruiting, hiring, and training
care providers for in-home support.
Institute:
Minot State University
500 University Ave West
Minot, ND 58701
Contact:
Cathy Haarstad
(703) 858-3580
(703) 858-2308 FAX
E-mail Address:
haarstad@farside.cc.misu.nodak.edu
Period:
9/01/01 - 1/31/03
Funding:
$200,000
Project Officer:
Diann Winford
(202) 690-5963
Project #:
90DF0049
Title:
"The Arizona Coalition for Family Support and Self-
Determination"
Abstract:
This project will develop and implement strategies to establish family
support and self-determination policy and practices that reflect a family/
A388consumer-driven systemof services. Plans are to develop and maintain
a coordinated statewide system for delivery of training and technical
assistance and also an infrastructure for a communications
network for existing services and advocacy groups. Persons
with a disability will hold key positions in this program.
Institute:
Northern Arizona University
Institute for Human Development
P.O. Box 5630
Flagstaff, AZ 86011
Contact:
Diane Lenz
(520) 523-7032
(520) 523-9127 FAX
E-mail Address:
diane.lenz@nau.edu
Period:
9/01/01 - 8/31/02
Funding:
$200,000
Project Officer:
Sharon Delaney
(202) 690-5984
Project #:
90DF0050
Title:
"Virginia Is for Families"
Abstract:
The approaches that will be used to accomplish these goals and
objectives will be identifying policy issues that create barriers to
success and formation of partnerships with key policy makers who
can develop and implement effective strategies for change and support
grassroots efforts through forums, training, and the dissemination of
information. A statewide legislative and policy council will consist largely
of family members and individuals with disabilities, who will be involved
in defining policy issues, recommending actions to be taken, and identifying
effective agents for change.
Institute:
Virginia Commonwealth
University Sponsored Programs
P.O. Box 980568
Richmond, VA 23298
Contact:
Tera Yoder
(804) 828-3879
(804) 828-0042 FAX
E-mail Address:
tyoder@titan.vcu.edu
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0051
Title:
"Empowering Families of Children with Developmental
Disabilities"
Abstract:
This project roposes to enhance its efforts to implement
person-centered services through the active involvement of families and
consumers with developmental disabilities in planning, implementation
and evaluation of a statewide foster/adoptive parent system. The
project will focus on working with students transitioning from
school and will provide training for students, families, and teachers
regarding planning, transition, self-determination, and making
community connections. It will also help identify people
and agencies that can be an asset to these plans.
Institute:
South Carolina State
Department of Disabilities
and Special Needs
P.O. Box 4706
Columbia, SC 29240
Contact:
Don Fender
(803) 898-9661
(803) 898-9653 FAX
E-mail Address:
dfender@ddsn.state.sc.us
Period:
9/01/01 -8/31/02
Funding:
$200,000
Project Officer:
Sharon Delaney
(202) 690-5984
Project #:
90DF0052
Title:
"Partners in System Change: Building Family and Community
Capacity"
Abstract:
In collaboration with families, local family support
councils, and organizations across the state, plans are to build
a sustainable network of skilled families and family support to
enhance family-governed and family support resources. The
project will foster opportunities for parents to interact with their
communities. Project staff will include consultants and parents
of children with disabilities and self-advocates. Plans are to
build on existing projects and provide a solid foundation for
implementation of self-managed support funding and
development of an infrastructure of support. The project will A574
provide experiential learning and training so that parents can
become knowledgeable about resources for their children and families.
Institute:
University of Colorado
Health Science Center
4200 East Ninth Ave., C221
Denver, CO 80262
Contact:
Cordelia Robinson
(303) 864-5261
(303) 864-5270 FAX
E-mail Address:
crobinson@chden.org
Period:
9/01/01 - 1/31/03
Funding:
$200,000
Project Officer:
Diann Winford
(202) 690-5963
Project #:
90DF0053
Title:
"Family NET Works"
Abstract:
This project proposes to establish a
Family Advisory Council to advise and assist with implementation,
evaluation, and recommendations. It will focus on policy
development and creation of action plans to provide an
interactive, family-friendly website. Focus will be on empowerment
zones, foster/adoptive families, and children with special needs.
This array of information will link to essential resources and
supports; and plans are to reach out to unserved families,
especially those of cultural or linguistic diversity and aging
caregivers.
Institute:
Maryland Council on
Developmental Disabilities
300 W. Lexington Street
Baltimore, MD 21202
Contact:
Denise Marshall
(410) 333-0454
(410) 333-3686 FAX
E-mail Address:
director@family-networks.org
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0054
Title:
"Delaware Family Support Project"
Abstract:
This project proposes to create a statewide Family Policy Council to
support and improve collaboration across agencies and existing disability councils;
provide major outreach, education, and technical assistance and training efforts to
families and professionals across ethnic groups and generic services; and implement a
pilot project designed to promote family control of resources. The project will target
improving referrals and joint services to ensure use and quality of service availability for child care and social services to children with disabilities. Plans are to create a corps of
families who can train professional staff about disability, inclusion, and family needs and supports and take part in the pilot project to serve in implementing a statewide control
support resources model for making changes in funding and identifying needs rather than available services.
Institute:
University of Delaware
College of Human Resources,
Education and Public Policy
210 Hullihen Hall
Room 309
Newark, DE 19716
Contact:
Susan Tompkins
(302) 831-2136
(302) 831-2828 FAX
E-mail Address
sdt@udel.edu"
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0055
Title:
"Stronger Voices: Extending the New Voices Initiative for Family
Support"
Abstract:
The Governer's Council plans to develop an inter-
agency approach for integrating family support and move state
councils toward integration and inclusion in appointive
leadership in all state functions. It will focus on development
of customer on-line outreach and awareness, as well as
information access services, which will include the creation of a
public awareness campaign. Goals are to expand the information
analysis data collections to include services in diverse
communities and provide human resource development
training and technical assistance for project participants and in-
depth skills training for families of children with developmental
disabilities. The generic community services network will be
made up of participants with developmental disabilities
from diverse communities.
Institute:
Minnesota Governor's Council on
Developmental Disabilities
50 Sherburne Avenue
Room 309
St. Paul, MN 55155
Contact:
Colleen Wieck
(651) 296-9964
(651) 297-7200 FAX
E-mail Address:
Colleen.Wieck@state.mn.us
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
April Myers
(202) 690-5985
Project #:
90DF0056
Title:
"Family Leadership and Family Support System Change"
Abstract:
This project will address the need for systems change and continual
development of a strong advocacy group of families and support of
a statewide collaborative Task Force that provides guidance to
these groups. There will be further development efforts to
increase participation of minority families and aging family caregivers
through outreach and educational activities. Specific goals
are to conduct an ongoing assessment of policies and
develop a strong family leadership initiative through training
and technical assistance. The project will also provide technical
assistance to new and ongoing initiatives through an active
Family Support Task Force; develop an outreach and
training demonstration project for unserved and underserved
groups, including minority caregivers and aging caregivers; and
disseminate results of this project in Illinois and nationally.
Institute:
Illinois Department of Human Services
401 North Fourth Street
Springfield, IL 62702-5255
Contact:
Connie Sims
(217) 524-0260
(217) 558-2799 FAX
E-mail Address:
dhsc1587@dhs.state.il.us
Period:
9/01/01 - 1/31/03
Funding:
$200,000
Project Officer:
April Myers
(202) 690-5985
Project #:
90DF0057
Title:
"Project VISSIONS"
Abstract:
Visualizing an Integrated System of Support: Innovative Opportunities and Strategies -
To implement this project the Institute for Disability Studies will
undertake the development of a statewide vision, mission,
and set of organizing principles for systems change. Operating
principles will be field tested in two model sites. Data from all
project activities will be compiled into two publications which
will be used to promote public awareness and policy and
programmatic initiatives for systems change that will ultimately
impact the quality of life for families and their children with
disabilities.
Institute:
University of Southern Mississippi
Institute for Disability Studies
P.O. Box 5157
Hattiesburg, MS 39406-5174
Contact:
Pamela Miller
(601) 266-4119
(601) 266-4312 FAX
E-mail Address:
p.miller@usm.edu
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Sharon Delaney
(202) 690-5984
Project #:
90DF0058
Title:
"Implementing a Blueprint for Family Leadership and Professional Partnership"
Abstract:
Project objectives for this program are to increase the knowledge and skills of families with members who have disabilities, to enable them to participate fully and effectively in decisions related services. The program will encourage self-determination and advocacy and increase the knowledge and skills of families to impact policies and participate in governance and evaluation of systems of services and supports that assure choice and flexibility. Workshops will be
conducted for local teams of family members as well as professionals and self-advocates. The project will increase the number of family and professionals willing to be mentors through a web-based Mentoring Resource and promote dissemination of information on innovative
and effective research-based practices developed by other collaborative partnerships.
Institute:
Oregon Council on Developmental Disabilities
540 24th Place, N.E.
Salem, OR 97301
Contact:
Kathryn Weit
(509) 945-9943
(509) 945-9947 FAX
E-mail Address:
kathryweit@aol.com
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Sharon Delaney
(202) 690-5984
Project #:
90DF0059
Title:
"Double Jeopardy:"
Abstract:
This is a multi-agency collaboration to support older families who have sons and daughters with developmental disabilities. Plans for this project are to secure future services for persons with a disability as well as the aging parent. These agencies will jointly plan
and implement this program at the state and local levels. Activities will include cross-training; training on estate planning for attorneys and other professionals; training of family members, including those with mr/dd; and outreach to and education of known and hidden families. The
project will utilize lessons learned from Phase I and evaluate all training sessions and do a needs assessment/policy study on factors that affect family motivation. Products of this program will include a revised curriculum package, a media/promotional packet, and written
reports of activities and materials that can be replicated nationally.
Institute:
Ohio State Department of Aging
50 West Broad Street
Columbus, OH 43215
Contact:
Carol Shkolnik
(614) 752-9167
(614) 466-0298 FAX
E-mail Address:
cshkolnik@age.state.oh.us
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
April Myers
(202) 690-5985
Project #:
90DF0060
Title:
"Community Based Family Supports for Utah: A Continuing Systems
Change Effort"
Abstract:
The goals of this project are to support and continue
the development of a community action model that will improve services
and supports for family members with a disability. In continuing
this project, plans are to work with consumer action teams in Utah
to develop and implement a procedures manual for sustaining the
project within the communities and in cooperation with the project
advisory council, develop plans for replication of the model across
the state. The project will disseminate information on project activities
through publications, presentations, and webpages.
Institute:
Utah State University, Centers
for Persons with Disabilities
1415 Old Main Hill
Logan, UT 84322-1415
Contact:
Richard Baer
(435) 797-7009
435) 797-2044 FAX
E-mail Address:
dbaer@cpd2.usu.edu
Period:
9/01/01 - 1/31/03
Funding:
$99,999
Project Officer:
Diann Winford
(202) 690-5963
Project #:
90DF0061
Title:
"Massachusetts Family Supports Model Demo Project "
Abstract:
This project proposes to build upon lessons learned during the past to expand
capacity and promote systemic change. Plans are to develop a system
that is flexible and family directed with the advisory guidance of a
Family Support Group. Implementation of two new projects will be
established, as well as mentoring from existing projects. Multifacet
training programs will be established of best practices, culturally
competent family support, family leadership, and state agency and
support personnel. Through these training programs the project will
promote capacity building through integration of research and
evaluation and replicate promising practices in service delivery
to un/underserved families.
Institute:
Massachusetts State
Department of Mental Retardation
160 North Washington Street
Boston, MA 02114
Contact:
Gerald Morrissey, Jr.
(617) 624-7723
(617) 624- 7577 FAX
E-mail Address:
gerry.morrissey@state.ma.us
Period:
9/01/01 - 9/29/02
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0062
Title:
"Family TIES- Family Support"
Abstract:
The principal objectives of this project are to create a single point of
entry for a family-centered and directed culturally competent, community-based,
comprehensive, statewide system of supports for families of children with special needs.
Plans are to create a data collection system that will track families' success and satisfaction in meeting personalized goals in social, emotional, financial, and physical well being areas. Family TIES will be directed by members with the cooperation and participation of state agencies
and organizations currently providing support, training, and services to unserved and underserved communities.
Institute:
University of Nevada - Reno
Research and Educational
Planning Center, Sponsored
Project Administration
Mail Stop-325, Washoe County
Reno, NV 89557-0035
Contact:
JoAnn Johnson
(775) 784-4921 ext. 2351
(775) 784-4040 FAX
E-mail Address:
www.unr.edu/ospa
Period:
9/01/01 - 8/31/02
Funding:
$100,000
Project Officer:
Sharon Delaney
(202) 690-5934
Project #:
90DF0063
Title:
"Kentucky Family Support Project"
Abstract:
Kentucky Spin proposes to expand family support activities statewide to include
families and guardians of persons with disabilities of all ages, with a special focus
on previously unserved and/or minority families. Through a
coordinated system of all relevant state and local agencies, including
Kentucky's school-based Family Resource and Youth Services Center,
Special Education Parent Resource Centers, and family and
consumer advocacy groups, this project will provide training to a
minimum of 1,000 families on family supports, advocacy, and systems
change. Participating families will be matched with a family who has
successfully dealt with similar life issues (e.g., inclusive education,
transition, supported or independent living, employment, etc.) or
will be linked to other established support groups. Supports will be
available on a regional basis, with more local, family-friendly centers
for parent and families.
Institute:
Kentucky Spin
10301 Deering Road
Louisville, KY 40272
Contact:
Paulette Logsdon
(502) 937-6894
(502) 973-6464 FAX
E-mail Address:
spininc@aol.com
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Vern Evans
(202) 690-5980
Project #:
90DF0064
Title
"Family Support Demonstration Project: Michigan Outreach
Program "
Abstract:
The goals of this proposed implementation project are to
continue strengthening Michigan's support to families who have children
with disabilities through a culturally sensitive outreach program. Plans
are to expend support outreach gatherings to communities, conduct
field-tests where there continues to be a considerable need, and
provide outreach services and dissemination of materials to other
un/underserved areas and other professionals serving persons with
disabilities. Training and educational programs will be provided for
professionals who serve and support these families.
Institute:
Michigan Department of
Community Health
P.O. Box 30720
Lansing, MI 48909-8220
Contact:
Vendella Collins
(517) 334-6769
(517) 334-6123 FAX
E-mail Address:
collinsve@state.mi.us
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
April Myers
(202) 690-5985
Project #:
90DF0065
Title:
"South Dakota's Developmental Disabilities Family Support Project"
Abstract:
Plans are to work collaboratively with individuals and families, state
and federal agencies and programs, and local community agencies to
enhance services and develop a family support program on two
tribal lands and to provide and expand services to 50 families with
children who are underserved with developmental disabilities. The
project will develop and implement a flexible system to ensure full access
and utilization of existing programs and funding sources that support
families and consumers; provide goods and services where other
resources are not available; and maintain effective policy, statutes,
regulations, and funding necessary to sustain program services.
Institute:
South Dakota State
Department of Human Services
East Highway 34
Pierre, SD 57501-5070
Contact:
Wanda Sieler
(605) 773-3438
(605) 773-5483 FAX
E-mail Address:
www.state.sd.us/state/dhs
Period:
9/01/01 - 8/31/02
Funding:
$200,000
Project Officer:
Diann Winford
(202) 690-5963
Project #:
90DF0066
Title:
"Collaboration, Assessment, Planning, and Action, in our City"
Abstract:
This project proposes to further enhance and coordinate a statewide
system to implement generic family support for families of children of
all ages who have developmental disabilities. Through collaborative
efforts with other city agencies, plans are to facilitate a system of reform
through the development of Home and Communty Based Medicaid
waiver options and other mechanisms to fund family support services.
Efforts will be made to ensure support options to meet needs of older
caregivers of adult children with developmental disabilities; to ensure
a family-directed, community-based, culturally and linguistically
competent system that makes use of person-centered planning and
support; and promote legislation and policies that allow for services
and supports that are flexible and reflect the mission and principles of
the State Policy Council on Family Supports.
Institute:
District of Columbia
Department of Human Services
2700 M.L.King Jr. Avenue
Washington, DC 20032
Contact:
Mary Points Brown
(202) 279-6085
(617) 229-6090 FAX
E-mail Address:
mbrown@hotmail.com
Period:
9/01/01 - 2/28/03
Funding:
$100,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #
90DF0067
Title:
"PA Family Support Implementation and Coordination Project"
Abstract:
With collaborative efforts of state agencies and representatives of families
of children with developmental disabilities, the goals of this project are
to expand the current system of supports and create a comprehensive
program for all citzens with DD, to include decision-making roles of
individuals and family members, strengthen community capacity, and
improve the quality of life for these individuals. The project will work
to use state funds to provide respite services to children with physical
disabilities along with existing state-funded family support programs;
and with Council grantees and DD Act partners to create an array of
coordinated and expanded supports that are cross disability,
comprehensive, family directed, culturally competent, community based,
coordinated across disability program offices, rooted in the use of
generic resources and informal supports, and based on the concepts
of learning and implementation of a self-determination model.
Institute:
Pennsylvania State
Department of Public Welfare
Developmental Disabilities Council
Forum Buillding, Room 51
Harrisburg, PA 17120
Contact:
Graham Mulholland
(717) 787-6058
(717) 772-0738 FAX
E-mail Address:
gmulholland@state.pa.us
Period:
9/01/01 - 1/31/03
Funding:
$200,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90DF0068
Title:
"Developing Statewide Family Support through Local Council Collaboratives"
Abstract:
The emphasis of this project is to establish a statewide
system of Local Family Support Councils that is linked with existing local
initiatives supporting families, to expand local participation of parents
and family members of individuals with developmental disabilities, and
develop community resources and natural supports. This project will
disseminate and promulgate principles developed by the Family Support
Council; set standards for models; and promote services statewide that
are consistent, reliable, resource-based and person-centered, adapted to
local community needs, and easy to find and easy to use. It further aims
to collaborate with and build upon existing support networks for families
that are not currently focused on DD, by providing training, technical
assistance, and support around issues of disability, while continually
working to integrate people with disabilities into those community
networks and include local families in the development of policies,
practices, and programs which directly impact their lives in the .
community.
Institute:
Governor's Council on Developmental Disabilities
#2 Peachtree Street, N.W.
Suite 210, 3rd Floor
Atlanta, GA 30303
Contact:
Cindy Arceneaux
(404) 657-2129
(404) 657-2132 FAX
E-mail Address:
carceneaux@dhr.state.ga.us
Period:
9/01/01 - 1/31/03
Funding:
$100,000
Project Officer:
Sharon Delaney
(202) 690-5984
Project #
90DF0069
Title:
"Indiana Family Support Project"
Abstract:
The goals of this project are to develop a family support pilot project in the
southeast region of Indiana to increase access to available family support resources
by supporting the development of a statewide information and referral system. This
project will be implemented by the Governor's appointed Family Support Council,
consisting primarily of individuals and family members of individuals with
disabilities. The aim of this project is to build on existing activities
of support agencies involved in this project and train families to increase awareness
of community supports to ensure that consumers are able to make informed choices. Dissemination of data collected from the support network will be transferred to the
phone-based 211 referral system. This will increase the availability of community
resources and educate individuals with disabilities on how to access community
supports.
Institute:
Indiana Family and
Social Services Administration
402 West Washington Street
Indianapolis, IN 46207
Contact:
Jackie Pitman
(317) 232-1434
(317) 232- 1240 FAX
E-mail Address:
jpitman@fssa.state.in.us
Period:
9/01/01 - 1/31/03
Funding:
$200,000
Project Officer:
April Myers
(202) 690-5985
Project #:
90DF00670
Title:
"The Connecticut Family Support Network"
Abstract:
This project proposes to build its Family Support Council and strengthen grassroots
and local family support networks, as well as developing and implementing a
statewide family support network, along with encouraging diverse
participation in the support network. Project implementation will include
training for all participants in the areas of best practices in family support,
needs assessments, and the Study Circles Community Dialogues Series. The
project will be made up of parents with children with disabilities and a parent
coordinator will be identified for each regional area in Connecticut. Based on
legislative and policy changes, needs assessment will be developed along
with a work plan to address local needs. Project activities will also include
establishment of a website, listserv, and monthly bulletins on family
support, and a training conference which will highlight support for regional
activities, present an overview of the project, and feature national issues
in family support.
Institute:
University of Connecticut
Health Center
253 Farmington Avenue
Farmington, CT 06030
Contact:
Mollie Cole
(860) 679-1504
(860) 679-1571 FAX
E-mail Address:
mcole@nsol.uchc.edu
Period:
9/30/01 - 2/28/03
Funding:
$200,000
Project Officer
Jennifer Johnson
(202) 690-5982
Project #:
90DF0071
Title:
"DecisonMakers"
Abstract:
The Alabama Network of Support Councils, which is comprised
of people with developmental disabilities and family members,
will undertake efforts to implement this project with two primary objectives.
Activities under the first objective will include public forums, a consumer
satisfaction survey, needs reassessment, and a comprehensive review of
family support policies and practices. To facilitate the review, the
project will develop a self-determination-based framework for policy and
practice analysis. The second objective is to create a strong and
sustainable foundation for consumer-driven family support policy in the
State. Activities will include the establishment of a state policy council,
publishing a monthly newsletter with an emphasis on disability policy
issues, developing an on-line home page for the program, a coordinated
outreach effort targeting unserved and underserved people statewide,
and a Family Support Best Practices Conference.
Institute:
Alabama Governor's Office
on Disability
RSA Building, Suite 586
Montgomery, AL 36130
Contact:
Barbara Crozier
(334) 353-4663
(334) 353-0333 FAX
E-mail Address:
bcrozier@good.state.al.us
Period:
9/30/01 - 2/28/03
Funding:
$199,875
Project Officer:
Sharon Delaney
(202) 690-5984
Project #:
90DF0072
Title:
"Juntos Podemos - "Together We Can"
Abstract:
Plans are to initiate a design that will address the program goals and objectives in a
culturally sensitive, user-friendly format and to establish a vehicle that will provide potential consumers with fundamental information and advocacy skills needed to access and
utilize systems and supports available and to become knowledgeable consumers of such services. Further, the project will provide a venue for various consituents or stakeholders to work together as a means to improve,expand, and enhance service access and delivery. It proposes that these
efforts will result in multiple benefits for consumers, families, and the
greater developmental disabilities community.
Institute:
Family Care Council
300 Inverrary Blvd,
Suite 400
Pembroke Pines, FL 33319
Contact:
Bertha De LaRosa-Aponte
(954) 450-9022
(954) 436-3863 FAX
E-mail Address:
apontemb@juno.com
Period:
9/30/01 - 2/28/03
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0073
Title:
"New Horizons for First in Families of North Carolina,"
Abstract:
is a technical assistance project designed to promote the principles
support and self-determination) among persons with disabilities
and their family members, policy makers, and providers
across the state. New Horizons for First and Families
will provide a means to partner with state and local customer
leadership to firmly establish self-directed support
for persons with developmental disabilities.
Institute:
NC Dept. of Health & Human
Services, Div. of Mental
Health, Disabilities Section
3006 Mall Svs Center, Ste. 679
Raleigh, NC 27699-3006
Contact:
Cindy Parkey
(919) 733-4665
(919) 751-4645 FAX
Period:
9/01/00 - 6/31/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0024
Title:
"Impacting Wisconsin's Family Support System: Family Action Network, University of Wisconsin"
Abstract:
The State of Wisconsin is revamping its long-term support system for children and adults with disabilities. The system will provide opportunities for local communities to develop grassroots initiatives to promote changes that address issues of families of children with disabilities. The project will strengthen the dialogue between policy makers and families of children with disabilities so that family needs are better understood and system changes are made to address these needs.
Institute:
Board of Regents, Univer. of
WI System, Waisman Center
720 University Avenue
Madison, WI 53706-2280
Contact:
Daniel J. Bier
(608) 263-5254
(608) 262-5111 FAX
E-mail Address:
bier@waisman.wisc.edu
Period:
9/01/00 - 7/30/02
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0025
Title:
" Wyoming Family Support Network (WFSN)"
Abstract:
This project will strengthen its ties to families of children with disabilities through a partnership with the WFSN. It will link Wyoming's University Affiliated Program with the WFSN to develop a model demonstration project that will promote training and technical assistance for families, agencies, professionals and communities, create interagency coordination and collaboration, provide hearings and forums in local communities, and identify groups that are underserved and unserved.
Institute:
University Of Wyoming WIND/
UAP - College of Health Science
P.O. Box 4298
Laramie, Wyoming 82071
Contact:
Ken B. Heinlein
(307) 766-2766
(307) 766-2763 FAX
E-mail Address:
bum@netcommander.com
Period:
9/01/00 - 9/30/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0027
Title:
"DDD Family Support Urban Outreach Project - New Jersey
Division of Developmental Disabilities (DDD)"
Abstract:
Proposes to evaluate and revise its policies and practices so that resources and delivery can keep pace with needs of its constituents. A volunteer Advisory Board of consumers, families, advocates and state and local leaders will oversee creation of an action plan for four cities containing urban enterprise zones. This plan will seek members of ethnic, religious and cultural groups (especially DD consumers and families) to take part in Strategy Caucuses and establish ongoing liaisons.
Institute:
NJ Dept. of Human Services
Div. of Develop. Disabilities
50 East State Street, 4th Floor
P.O. Box 726
Trenton, NJ 08625
Contact:
Gwynn C. Brown
(609) 984-7355
(609) 292-6610 FAX
E-mail Address:
GwynnBrown@dhs.state.nj.us
Period:
9/01/00 - 9/30/02
extension
Funding:
$198,802
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0029
Title:
" Crossing the Bridge - Supporting Families from Ethnic Communities"
Abstract:
The focus of the project is to improve services for ethnic groups. The project will link families, agencies and organizations in their communities; develop a family monitoring program; conduct family community gatherings; train staff members from provider agencies in cultural competency and train generic service providers to better serve their clients with developmental disabilities.
Institute:
Dept. of Community, Trade and
Economic Development
906 Columbia SW, POB 48314
Olympia, WA 98504-8314
Contact:
Ed Holden
(360) 725-2873
(360) 586-2424 FAX
E-mail Address:
eh@cted.wa.gov
Period:
9/01/00 - 6/30/02
extension
Funding:
$200,000
Project Officer:
Alonzo Stewart
(202) 690-5557
Project #:
90DF0030
Title:
"Strengthening Family Centered Practices"
Abstract:
This project is to ensure that the new evolving systems initiatives that support families will assist those families to provide developmental opportunities for their children. It will help families assume the leadership role in planning for their children and help them access the resources and support of their communities.
Institute:
Rhode Island College
University Affiliated Programs
600 Mt. Pleasant Avenue
Providence, RI 02908
Contact:
A. Anthony Antosh
(401) 456-8072
(401) 456-8150 FAX
E-mail Address:
aantosh@rfc.edu
Period:
9/01/00 - 6/30/02
extension
Funding:
$199,664
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0031
Title:
""Oklahoma Family Support Project""
Abstract:
Will address the need to enhance the system of family support for families of children with disabilities. This project will equip family members and providers with the knowledge and skills to use a collaborative team approach to support families with disabilities. Training and technical assisitance will be provided to effectively equip new families and service provider teams to work in collaborative teams.
Institute:
University of Oklahoma Health
Sciences Ctr., UAP of OKLA.
P.O. Box 26901, ROB 342
Oklahoma City, OKLA. 73190
Contact:
Vyonda G. Martin
(405) 271-4500 x203
(405) 271-1459 FAX
E-mail Address:
vyonda-martin@ouhsc.adu
Period:
9/01/00 - 6/30/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0032
Title:
"Idaho Family Support Project"
Abstract:
This project proposes to enhance and increase support to aging families and families living in rural and remote communities. Project objectives are: Establish a state policy council to implement project goals; develop policy to strengthen support systems; provide training to ensure consistent delivery of services to all families; incorporate a statewide philosophy of family support; and develop innovative partnerships.
Institute:
University of Idaho, Center on
Disabilities and Human Develop.
129 West 3rd Street
Moscow, ID 83843
Contact:
Julie Fodor
(208) 885-3559
(208) 885-3628 FAX
E-mail Address:
jfdavis@uidaho.edu
Period:
9/01/00 - 6/30/02
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0034
Title:
"Project UNITE: For Families of Children with Disabilities"
Abstract:
"Project UNITE" proposes to establish a State Policy Council that will provide guidance for people with disabilities and create the distribution and analysis of a needs assessment to explore the supports and services needed by families of all cultures with developmental disabilities.
Institute:
University of NE Medical Ctr.
986810 Nebraska Medical Ctr.
Omaha, NE 68198-6810
Contact:
Deborah Reay
(402) 559-5735
(402) 559-6688 FAX
E-mail Address:
dkreay@unmc.edu
Period:
9/01/00 - 6/30/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0036
Title:
"Parent Empowerment Program"
Abstract:
The project goal is to increase access and awareness of services to families in need. The project will create a training package to make service providers involves developing a coordinated system of family supports that provides guidance to families and assists them in identifying critical needs. A State Policy Council will be formed to direct the the work of the training developers and to address the particular services needs and services gaps.
Institute:
Kansas Social and Rehab. Svs.
Div. of Health Care Providers
915 S.W. Harrison St, 5th Flr.
Topeka, KS 66612
Contact:
Sharon Johnson
(785) 296-3561
(785) 296-0557 FAX
E-mail Address:
sxlj@srskansas.org
Period:
9/01/00 - 6/3/02
extension
Funding:
$194,578
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0037
Title:
"West Virginia Family Support: Let's Get A Life"
Abstract:
Proposes to create a systems change that will bring about a "person-directed services system", which will allow people with disabilities to live lives of their own choosing. The project will bring together veteran adults, parents and family members and others to build the collaboration necessary to create systems change. This change will bring about a system to help people with disabilities live more productive lives.
Institute:
West Virginia Department of
Health and Human Services
Capital Complex Bldg. 3, #206
Charleston, WV 25305
Contact:
John Bianconi
(304) 558-0627
(304) 558-1008 FAX
E-mail Address:
jbianconi@wvdhhr.org
Period:
9/01/00 - 6/30/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0038
Title:
"Green Mountain Family Network"
Abstract:
This project will work with families, family organizations, and regional partnerships to build support networks by enhancing self-determined/self-managed support across service systems. A pool of Independent Services Brokers with direct experience with disabilities will help families who self-manage their care to be better informed about all available resources, services and opportunities.
Institute:
Vermont Agency of Human Svs.
103 South Main Street
Waterbury, VT 05671-0203
Contact:
Cheryl Mitchell
(802) 241-2220
(802) 241-2979 FAX
E-mail Address:
cmia@wpgate1.ahs.state.vt.us
Period:
9/01/00 - 9/30/02
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0039
Title:
"New Mexico Family Support Systems Change Project"
Abstract:
Proposes to develop a comprehensive system of family support that is community based, culturally competent, and family directed. The project will pilot its efforts towards working with caregivers and families of adolescents with disabilities to participate in developing family support concepts and resources. An on-line information system will be established that will enable families to access information on family supports resources. Families will receive training to prepare them to utilize family-directed funding, including the principles of person and family centered services, self-determination, and planning for the future.
Institute:
New Mexico Dept. of Health
1190 St. Francis Drive
Santa Fe, NM 87502-6110
Contact:
Marilyn Price
(505) 827-0683
(505) 827-2455 FAX
E-mail Address:
mprice@ health.state.nm.us
Period:
9/01/00 - 6/30/02
extension
Funding:
$172,620
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0041
Title:
"Po'ohala: To Carry on the Virtues and Skills of the Family"
Abstract:
This project proposes to help individuals with disabilities and their families demonstrate new approaches to family support, by developing policy recommendations and influencing policymakers to change systems to better support families and community living. By working with community leaders and policymakers, individuals with disabilities and their families will move the state towards creating a cohesive system that uses its funding in creative ways and helps the state value the efforts of all families that support and care for their sons and daughters with disabilities.
Institute:
Hawaii State Planning Council
on Developmental Disabilities
1250 Punchbowl Street
Honolulu, HI 96813
Contact:
Diana Tizard
(808) 586-8100
(808) 586-7543 FAX
E-mail Address:
hiddc@pixi.com
Period:
9/01/00 - 6/30/02
extension
Funding:
$200,000
Project Officer:
Alonzo Stewart
(202) 690-5557
Project #:
90DF0042
Title:
"Tennessee Family Support Model"
Abstract:
The overall goal of this project is to provide training to increase participation, choice, and control in the provision of services while maximizing consumer involvement in the planning, development, implementation, and evaluation of a statewide system for implementation, and evaluation of a statewide system for supporting families. Plans are to increase coordination among public and private agencies serving people with disabilities and increase awareness of resources, laws, regulations, policies, practices, procedures, and organizational structures that facilitate or impede the availability or provision of support for people with disabilities.
Institute:
Tennessee Developmental
Disabilities Council
Cordell Hull Bldg., 5th Flr.
425 5th Ave., North
Nashville, TN 37423
Contact:
Wanda Willis
(615) 532-6615
(615) 532-6964 FAX
E-mail Address:
wwillis@mail.state.tn.us
Period:
9/01/00 - 4/30/02
extension
Funding:
$200,000
Project Officer:
Alonzo Stewart
(202) 690-5557
Project #:
90DF0043
Title:
"Far North Family Support Project"
Abstract:
The approach of this project is to help families without services maintain the ability to care for their children with disabilities. The project will address the creation of a system that embodies good family-centered practices, enhances a sense of community, mobilizes resources and supports, shares responsibility and collaboration, protects family integrity, strengthens family functioning and utilizes proactive human services practices. Also, it will identify and implement policies and standards of best practice that will result in a system of care that is coordinated, comprehensive, and culturally competent with a focus on unserved and underserved families.
Institute:
State of Alaska, Department of
Health and Social Services
Div. of Mental Health and DD
P.O. Box 110620
Juneau, AK 99811-0620
Contact:
Constance Anderson
(907) 465-3370
(907) 465-2225 FAX
E-mail Address:
canderson@health.state.ak.us
Period:
9/01/00 - 1/31/03
extension
Funding:
$200,000
Project Officer:
Joan Rucker
(202) 690-7898
Project #:
90DF0044
Title:
"Family Friends Project"
Abstract:
The project proposes to design,
implement, and evaluate program models that test the
feasibility and value of using older adult volunteers as part of
a services support network for aging parents of adult children-
with disabilities. It will explore ways to involve volunteers
assisting families, identify promising approaches, and
disseminate this information among those with disabilities
in the community. This organization will develop a pilot-
project to test the possibilities of refining or reforming
state services for elderly parents with aging children who have
developmental disabilities.
Institute:
The National Council on
the Aging
409 Third Street, S.W.
Washington, DC 20024
Contact:
Miriam Charnow
(202) 479-6675
(202) 479-0735 FAX
E-mail Address:
www.ncoa.org
Period:
9/30/01 -9/29/04
Funding:
$200,000
Project Officer:
Jennifer Johnson
(202) 690-5982
Project #:
90XD0005