Data Collection for Supporting Families

September 30, 2011
Audience:
Projects of National Significance
Topics:
Data Collection, System Change
Types:
Project Abstracts

Abstract

Collaborating with the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Service Research Institute (HSRI), the Association of University Centers on Disabilities (AUCD), the National Down Syndrome Society (NDSS), the National Youth Leadership Network (NYLN), Parent Information Centers, Parent to Parent USA, and other organizations providing family support, the Data Collection for Supporting Families Project will examine data the services and supports provided to families who have a family member living in the home. Guided by a family expert panel, the project will:

  • Access data on state supports and services that has been previously collected;
  • Develop key definitions related to supports and services;
  • Generate a standard set of key state indicators that can be used to benchmark progress;
  • Create a profile of such supports and services that can be updated and used to track trends;
  • Implement an annual data collection effort that produces reliable national and state-by-state data about family supports using strategies designed to ensure that the information reported by states is accurate and comparable across states;
  • Produce an interactive website with an online data dashboard that can be used to track, compare and contrast progress made on achieving outcomes at the national and state levels; and
  • Design a plan to develop an electronic, web-based data distribution system that will be easily accessible to families and people with intellectual or developmental disabilities.

Organization

Regents of the University of Minnesota
214B Pt H
150 Pillsbury Drive SE
Minneapolis, MN 55455-0223
Main Phone: 612-624-6300 
Web: http://www.rtc.umn.edu

Contact

Sheryl A Larson
Phone: 612-624-6024
Fax: 612-625-6619
E-mail: larso072@umn.edu

Award Amount

$200,000 per year

Project Period

9/30/11 – 9/29/16

Project Officer

Katherine Cargill-Willis
E-mail: katherine.cargill-willis@acf.hhs.gov
Phone: 202-690-5791

Grant #

90DN0291