PCPID Quarterly Meeting: April 24–25, 2008

President’s Committee for People with Intellectual Disabilities

April 24, 2008
Audience:
The President’s Committee for People with Intellectual Disabilities (PCPID)
Topics:
Announcements, Meeting Announcements, Publication (Documents and Resources), Meeting Minutes
Types:
Meeting Minutes, Meeting Announcement

Action Items

  1. Dr. Tartaglia will provide a list of Fragile X Clinics.
  2. At the request of panelist, Ahmed Calvo, M.D., staff will e-mail to Committee members the article, The Meaning of Translational Research and Why it Matters, in the January 9, 2008 issue of the Journal of American Medical Association.
  3. At the request of Linda Starnes, Dr. Claire Coles will share copies of her presentation addressing epidemiological data related to FAS with Committee members.
  4. PCPID staff will invert the order of the sections of the draft report, and disseminate the revised draft in the next couple of days (by April 30, 2008).
  5. Staff will check with leaders of groups mentioned in the section of the draft Report that addresses research consortium models, to make sure they are comfortable with the language used to describe their consortium.
  6. Staff will revise the draft report to reflect Committee members’ suggested edits, and send it again to experts in the field who have met with us.
  7. Staff will research the budgetary provisions of other advisory committees that are similar to PCPID, draft a short letter expressing concerns related to the PCPID budget, and schedule a telephone conference with the full Committee to discuss the concerns and appropriate strategies to address them. Members will be provided an opportunity to review the letter before signing and sending, separately.
  8. Chairman Sweezy and Stephen Hollingshead will draft a brief statement, for inclusion in the 2009 PCPID Report to the President, that recognizes the contributions of people who have helped lay the groundwork that has resulted in the privileges that people with intellectual disabilities currently enjoy.
  9. Jewel Bazilio-Bellgarde will e-mail information on: a) the National Conference on Service and Volunteering, in Atlanta that CSCN is sponsoring with the Points of Light Foundation, a hands-on network; and, b) a conference in October 2008 that is specifically about including people with disabilities in national service.
  10. The Committee will send an e-mail to Harris Hollin, stating that members missed him and hope he's feeling better.

Note: Stephen Hollingshead started the message on his Blackberry.

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