University of Southern California UCEDD at the Children’s Hospital Los Angeles
The University of Southern California's University Center for Excellence in Developmental Disabilities at Los Angeles Children’s Hospital is currently working on “Project Access: Improving Access to Care for Children/Youth with Epilepsy and Their Families in Rural and Frontier Communities.”
The project seeks to assure access to an integrated system of care for children with epilepsy and their families in rural and frontier communities in Alaska, California, Nevada and Wyoming by:
- establishing state teams to define and carry out state-specific improvement plans;
- conducting distance education training for primary care providers and parents;
- defining and addressing policy issues related to the unique needs of families of children with epilepsy;
- participating in the Learning Collaborative to assure continuous quality improvement and improve access to care for children with epilepsy;
- partnering with the National Epilepsy Foundation to develop a plan for improving community awareness of epilepsy; and
- disseminating mental health services information specific to early childhood health providers, educational systems, and families.
The project will conduct trainings, demonstrations and research and will disseminate its findings to its target populations in those states.