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7.3 DEVELOPMENTAL DISABILITIES (HEALTH)
The DD health care goal is: "Improve the health of people with developmental disabilities and increase their access to the full range of needed health care services." This goal includes the following outcomes: "Individuals with developmental disabilities and their families have access to the health care information they need to make choices. Health care for people with developmental disabilities is available, affordable, accessible, and equitable. Health care personnel are appropriately qualified to meet the health care needs of people with developmental disabilities."
(See information on DD partnership process, data, and resources under Strategic Objective 1.)
Program-wide Performance
There have been concerns with fluctuations in the data prior to FY 1998 for Performance Measure 7.3a caused by the use of varying methodology from UAP to UAP. Some of these fluctuations occurred as UAPs gained experience in making projections and collecting performance data. For that reason, FY 1998 has been selected as the baseline year. In FY 1999, UAPs reported 4,100 health care providers trained to meet the needs of people with developmental disabilities (measure 7.3a).
Summary Table
| Performance Measures | Targets | Actual Performance |
Reference (page # in printed document) |
|---|---|---|---|
| PROGRAM GOAL: Improve the health of people with developmental disabilities and increase their access to the full range of needed health care services. | |||
| 7.3a. Increase the number of health care providers trained to meet the health needs of people with developmental disabilities as a result of DD program intervention. | FY
02: 5,200 FY 01: 5,000 FY 00: 4,825 FY 99: 4,000 |
FY
02: FY 01: FY 00:1/02 FY 99: 4,100Ö Baseline FY 98: 3,733 |
Px |
| Availability of FY 2000 Data: Data
are expected to be available in January 2002 Ö This represents FY 1999 data that were not available when the FY 1999 report was submitted with the FY 2001 CJ. |
|||
Performance Measures for FY 2002 and Final Measures for FY 2001
Performance for this measure is affected by a number of factors including the impact of the economy on the cost of providing health care generally, and especially to people with disabilities; the impact of social attitudes regarding the desirability and potential for people with developmental disabilities to benefit from full access to health care and the attitudes of health care providers toward this special needs population.
The above issues combined with difficulties in data collection and interpretation have created instability in the performance data. ACF's technical assistance to University programs has helped to improve data stability and programmatic outcomes. Performance for this measure in FY 2002 is projected to increase.
PROGRAM GOAL: Improve the health of people with developmental disabilities and increase their access to the full range of needed health care services.
Objective: Increase the number of health care providers trained to meet the health needs of people with developmental disabilities.
7.3a. FY 2001: Increase to 5,000 the number of health care providers trained to meet the health needs of people with developmental disabilities as a result of DD program intervention.
FY 2002: Increase to 5,200 the number of health care providers trained to meet the health needs of people with developmental disabilities as a result of DD program intervention.
Data source: UAP annual report
This measure focuses on the access to proper health care for persons with developmental disabilities. Because so few health care professionals are aware of the special health care needs of persons with developmental disabilities, there is a significant need for training. Actual performance remains unstable, largely due to changes in allocation of training resources, but we believe there is potential for gradual improvement.
Three programs in the States combine to provide a comprehensive approach to accomplishing this target. The Council on Developmental Disabilities (CDD) works to create systems change within the health care systems, including demonstration of more desirable models. Education and research efforts strive to improve public and professional opinion on health care, involving both the Council and the Centers for Excellence/University Affiliated Programs. The University Affiliated Programs are the main providers of training to health care professionals. Protection and Advocacy Programs have worked to ensure that the rights of patients with developmental disabilities are protected.
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